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Sep 12, 2024
10:29:17pm
blackandblue Truly Addicted User
Seeing posts about Tua’s concussion. Figured I’d give an update on my daughter.
It was 4 weeks ago tonight she had her concussion.

It’s been a wild ride. The first two weeks after the concussion involved a ton of sleep, very little activity, very little ability to function. It then evolved into consistent seizure like activities and more severe amnesia. We spent a few days up at primary children’s running CT/MRI/EEG tests. Everything came back good with the actual structure of the brain. But there is a major disconnect between the brain and the nervous system.

Outside of immediate family, grandparents, and about 3 aunts and cousins, she has forgotten every single person. Friends, family, and neighbors come to visit and she has no idea who they are and no recollection of any past memories. She’s able to communicate right now at about the emotional intelligence of a 5 year old. I’ve never cared for an Alzheimer’s patient, but I imagine this is very similar.

We’re currently working on therapy to learn coordinated movements again. She is struggling to pedal a stationary bike with no resistance. Her legs just can’t do that coordinated movement.

She’s currently been unenrolled from school. I’m not sure what that future looks like. I have no idea what her long term outlook is. We’re trying to maintain faith and hope that the hard drive still has all the data and that with time it will all be restored. It’s been one of the hardest things I’ve experienced watching my strong, athletic, confident daughter have her life flipped upside down from one fluke accident like this.

The brain is crazy. And brain injuries are so hard to understand.
blackandblue
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blackandblue
Joined
Aug 12, 2011
Last login
Sep 17, 2024
Total posts
25,612 (2,684 FO)
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