Praying for you and your family. My wife experienced similar symptoms postCOVID,

Dec 10, 2024
8:32:11pm

Roykeane Redshirt Freshman

It's been a long road but significant improvement in the 4-12 months period, leading to about 95% improvement after 2-3 years. Keep your spirits up.

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Roykeane

Bio page: Roykeane
Joined: Jan 11, 2021
Last login: Dec 27, 2024
Total posts: 143 (0 FO)

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Messages

Author

Time

It’s been 4 months since I last posted about my daughter. It’s been a pretty

blackandblue

Dec 9, 8:27pm

So sorry your family is going through this. I can’t imagine how hard it would be

ossicles

Dec 9, 8:29pm

I’ve been a little bit in fight or flight mode through it all. But yeah, when I

blackandblue

Dec 9, 8:49pm

That makes sense.

ossicles

Dec 9, 8:50pm

Do the doctors believe her mental and/or physical capacity will return to 100% eventually?

TADOW

Dec 9, 8:33pm

They do. No one has a timeline. But we’ve been passed off so many times that

blackandblue

Dec 9, 8:44pm

Brains are hard to give clear answers on, unfortunately.

Baraeus

Dec 9, 9:35pm

Dang man. I am so sorry, I didn’t know. My heart breaks for

The Pope

Dec 9, 8:33pm

Do you have a chiropractor as part of her care team? Often many of the symptoms

DevilCougarDragon

Dec 9, 8:36pm

I’ll say it, so what if I’m suspended, this is a ridiculous recommendation.

IGlowInTheDark

Dec 9, 9:06pm

Odds may be somewhat low, but far better than you present

NYC and Japan

Dec 9, 9:54pm

Jim McMahon would disagree.

DevilCougarDragon

Dec 10, 8:41am

RE: Do you have a chiropractor as part of her care team? Often many of the

Uno Doctoro

Dec 9, 9:55pm

This is horrible advice. Last thing she needs is someone cranking on her neck.

EDthoracotomy

Dec 9, 10:29pm

Hate to bring this in, but is there a lawsuit to get school’s insurance to help with the years of care she MAY need?

Dr MoBYU

Dec 9, 8:37pm

There was no foul play or anything. If what happened to her happened to 99.9% of

blackandblue

Dec 9, 8:46pm

Might still consult a lawyer. Usually free and there is sometimes negligence of which we are unaware. Not saying to sue

Dr MoBYU

Dec 9, 8:48pm

Another option is to make a claim with the schools insurance. Often they want to give you something to assure you

Dr MoBYU

Dec 9, 8:53pm

As a VB dad this breaks my heart. Prayers to your daughter and bless you for doing your best to help her

Pete

Dec 9, 8:38pm

Wow, this is heartbreaking. I’m sorry man.

zsmooth

Dec 9, 8:41pm

I'm so sorry to hear this. I can't imagine what ya'll must be going through.

Chemish

Dec 9, 8:42pm

Are you homeschooling now? That would probably be a good option - at least for

Iman23

Dec 9, 8:43pm

We haven’t done anything yet this year except for an art class. It’s crazy, her

blackandblue

Dec 9, 8:48pm

We know a girl that fell back off a couch and hit her head on a lamp table.

Cnation

Dec 9, 8:49pm

You need to finish this story! Is she better now?

blackandblue

Dec 9, 9:14pm

Sorry, had to get the latest update.

Cnation

Dec 9, 10:22pm

That’s really tough. Special ed isn’t as bad as you might think. You have

tehjunction

Dec 9, 8:54pm

It sounds like OP and his wife are open to it, but despite her limited cognition, their daughter is aware enough to know

RootieBoy

Dec 9, 9:07pm

How many specialists has she seen?

Zedhead

Dec 9, 9:05pm

Are you in Utah? Tied in with the U of U Concussion program?

IGlowInTheDark

Dec 9, 9:15pm

We’ve been seen by them. They put us with behavioral health. And from there it’s

blackandblue

Dec 10, 7:33am

The closest experience I have with this is with my brother-in-law who developed fat emboli syndrome after fracturing

RootieBoy

Dec 9, 9:33pm

I’ve seen FES twice and it’s a very strange course exactly as you said. So glad she waited.Someone could have told her!

Dr MoBYU

Dec 9, 9:38pm

She actually deferred to my FIL and MIL. They told her to give it a week, and she ended up waiting about 10 days before

RootieBoy

Dec 9, 9:43pm

Thanks for sharing that.

blackandblue

Dec 9, 10:03pm

So sorry to hear about this. Shower your daughter with love and patience.

qwerew

Dec 9, 9:43pm

A couple of thoughts...rely upon your PCP. That is your biggest ally. When

Uno Doctoro

Dec 9, 9:51pm

I forgot to add this...in the initial stages of my FND patients, I see them

Uno Doctoro

Dec 9, 9:57pm

Here is someone that might be able to connect you to various helpful programs

NYC and Japan

Dec 9, 10:03pm

My wife’s best friend crashed on a skateboard. Hit her head hard.

MacGyver

Dec 9, 10:20pm

Please watch this story about my friend’s daughter who went through similar issues after a concussion:

ConnCoug

Dec 9, 10:58pm

This made my daughter cry this morning. I think she feels so alone and hopeless

blackandblue

Dec 10, 2:47pm

Really sorry you are going through this…prayers for all of you

The Chief

Dec 9, 11:22pm

RE: It’s been 4 months since I last posted about my daughter. It’s

CaptainCaveman

Dec 10, 7:18am

Cognitive FX is still in the cards. We worked with Neural Effects, their sister

blackandblue

Dec 10, 8:02am

Praying for you and your family. My wife experienced similar symptoms postCOVID,

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