If I don't have my digestive enzymes I get stomach aches for about 70% of the day. It's pretty brutal. Typically after the lungs and exacerbations the digestive issues are the biggest issue with CF. Plus I have CF-induced Diabetes. That you were able to go this long without any type of problem is frankly incredible.

I have done a lot of research in the past 6-8 months. Trikafta, a CF Modulator, was made available roughly 5 years ago. It was a revolutionary drug in the treatment of the disease. It combines three drugs that together allow cells in the lungs to behave like normal cells. This helps so mucus doesn't build up quite as fast which in turn reduces how quickly bacterial infections grow. It helps approximately 93% of CF patients. And drug testing and work on the 7% of those with more unique mutations continues.

Your doctor can tell you what CF mutation you have. And thanks to the CF database https://cftr2.org/ you can look up the different mutations. My mutation is the only one catalogued in the United States. Not sure if that also is true worldwide.

There is a vast amount of resources available on the Cystic Fibrosis website https://www.cff.org/. I often find myself looking at the different antibiotics ( https://www.cff.org/managing-cf/antibiotics ) and drugs that are currently in the testing phase. You can see what testing phase each drug is in.

When I was a kid they had week-long CF camps where CF patients would get together and get to enjoy different activities while with other patients. It was a blast. So great for youth to be able to get to know those that are also experiencing the disease. However today I mention this to doctors and CF nurses that are new to the field and they are flabbergasted. It's been learned over decades it's generally not a good idea for CF patients to be in close proximity with each other as the bacterial infections (Staph aureas, Pseudomonas aeruginosa, Pseudomonas sepatia, etc) are spread easily.

As is apparent in this thread CF treatment options have progressed remarkably in the past decade. CF patients are living longer, healthier lives. There is also a lot of support from other CF patients through different websites and forums. The Cystic Fibrosis Foundation has grown ten fold over the past 30 or so years.